I met with my Oncologist yesterday and before I was able to make my request to take a few weeks off Dr. Cercek decided that due to my chronic diarrhea I would not get my usual lethal dose that day. I was elated. Instead of chemo I spent the next two hours hooked up to an IV Pole receiving some desperately needed hydration. While I did not get to go home early at least I was spared the liquid fire which has been pumping through my body and destroying everything in sight.
My immune system is dangerously low. This makes me susceptible to a myriad of opportunistic infections. The chronic diarrhea is a result and I have come down with a super infection. Dr. Cercek does not want me to travel at this time. My good friend Andre Ashby already booked me a flight to spend a week with him in Sunny South California. So guess what? I'm going away no matter what the Doc says. Honestly folks, I really don't think my Doctor really knows whats best for me right now. She is doing her best and sadly it is not good enough. We are all learning about this dreadful monster as we go along. That being said, I'm not going to hang on every word Dr. Cercek says. Chemo Hell will be right here where I left it, waiting for me to pick up where I left off.
Nurse Halina came to see me today and she shed some light on the reason why my bladder spasms have increased. According to Halina, any bladder infection such as the one I am currently experiencing will exacerbate and compound these dreaded spasms. I have heard the gamut of reasons as to why this is..."you need to lay flat when you sleep"... "lay on your back"..."drink more and stay hydrated"..."say the alphabet backwards"..."stop eating candy"...etc.etc.etc. I just nod in agreement and pray for patience.
As I head out to the West Coast, I am in the process of getting a roommate to help pay the rent. I have been turned down and denied twice any rental assistance so a roommate seems to be the best solution. As I figure it, I am mostly confined to my bed in my small room so anyone who would come and live here will have ample space and access to walk about and enjoy whatever this apartment has to offer. The sooner someone moves in the better it will be for all. Rent has not been paid since August of last year and the time has come to address this matter before whatever grace extended to me at the present moment runs out and I find myself not only jobless but dreadfully homeless.
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Glad that you're getting away w/Andre - can you maybe go to Bethel Redding? I know no place is the end all for healing - but there has been a lot going on over there - it would be a little drive up from Southern Cali - but maybe Andre can help you decide if it's worth a trip : )
ReplyDeleteLove you Steph